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Family, Parenting and Religion

2013-10-10T15:59:15-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

“The Discipline of Place” and Things to Read this Week

Last updated on: October 10, 2013 at 3:59 pm By Amy Julia Becker

The discipline of place, the books I'm loving, and a smattering of articles on faith, family, and disability. Read more

Articles

Books

2013-10-09T13:44:50-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

Reversing Down syndrome and the Golden Rule

Last updated on: October 9, 2013 at 1:44 pm By Amy Julia Becker

"What mega-vitamins are you taking to overcome your deficiencies?" Lawyer, bioethicist, and blogger Mark Leach considers what the golden rule has to do with treating Down syndrome. Read more

Disability

Down Syndrome

curing down syndrome

down syndrome research

2013-10-09T09:46:49-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

Down Syndrome Research, Hope for My Daughter

Last updated on: October 9, 2013 at 9:46 am By Amy Julia Becker

Mother and blogger Leticia Velasquez considers whether she would use gene therapy to mitigate the effects of Down syndrome for her daughter Christina: "How does her future look right now? Difficult, unless there is a medical breakthrough." Read more

2013-10-08T09:51:52-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

On the Possibility of Curing Down Syndrome by Lisa Morguess

Last updated on: October 8, 2013 at 9:51 am By Amy Julia Becker

Blogger Lisa Morguess considers whether she would chose therapeutic interventions to mitigate the effects of Down syndrome for her son Finn. "If what we are talking about it quality of life, then we have to ask ourselves: do smart and able equal happy and successful? Is an easier life a better life? Is a life with fewer struggles a better life?" Read more

2013-10-08T09:29:37-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

This Week: Three Parents’ Perspectives on Curing Down Syndrome

Last updated on: October 8, 2013 at 9:29 am By Amy Julia Becker

As a part of my ongoing series about whether or not “curing” Down syndrome is a desirable goal, I’ve asked three parents of children with Down syndrome to offer their perspectives. Last week, we heard from Rachel Adams (The Damaging Language of “Cure” and Down Syndrome) about the social and linguistic problems with this idea. We also heard from Fayal Guedj, one of the doctors who has been researching this topic (Down syndrome: Toward a new research era and effective... Read more

Down Syndrome

2013-10-07T10:26:54-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

My Exceptional Child

Last updated on: October 7, 2013 at 10:26 am By Amy Julia Becker

It is my privilege as a mother to be the one who knows why and how my kids are exceptional, even if no one else ever sees it. Read more

Down Syndrome

family

special needs

2013-10-03T15:02:11-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

I Don’t Love Tina Fey and More Great Stuff to Read

Last updated on: October 3, 2013 at 3:02 pm By Amy Julia Becker

Bossypants, Power, Ruthie Leming, and a host of articles to read, in all your free time... Read more

Articles

Books

2013-10-03T10:02:04-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

Down Syndrome: Towards A New Research Era And Effective Therapies

Last updated on: October 3, 2013 at 10:02 am By Amy Julia Becker

Dr. Faycal Guedj summarizes research related to treating patients with Down syndrome and answers my questions about cognition, heart defects, and his sister Imene. Read more

Down Syndrome

cognition

DS research

2013-10-02T13:06:15-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

The Damaging Language of “Cure” and Down Syndrome

Last updated on: October 2, 2013 at 1:06 pm By Amy Julia Becker

Once again we’re hearing news of a breakthrough in research on drug therapies to enhance the cognitive processing of people with Down syndrome. And once again, the discussions seem to fixate on the controversial notion of a “cure.” Why do we keep having the same conversation? A guest post by Columbia Univsersity Professor and author of Raising Henry, Rachel Adams. Read more

social construction of disability

2013-10-01T09:18:05-04:00

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

Should We Try to Cure Down Syndrome?

Last updated on: October 1, 2013 at 9:18 am By Amy Julia Becker

In honor of Down Syndrome Awareness Month, a series of posts to address the problems and potentials of research to mitigate the effects of Down syndrome. Read more

Down Syndrome

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