Why Women Need Pre Prenatal Counseling

Last updated on: January 25, 2013 at 6:22 am by Amy Julia Becker

Why Women Need Pre Prenatal Counseling 2013-01-24T10:26:40-05:00 Amy Julia Becker

LOGO Patheos Explore the world's faith through different perspectives on religion and spirituality! Patheos has the views of the prevalent religions and spiritualities of the world.

The following is an excerpt from my new ebook, What Every Woman Needs to Know About Prenatal Testing: Insights from a Mom Who Has Been There:

This book comes out of the past six years of learning about Down syndrome and other disabilities, loving our children in the midst of the struggles of trying to be good parents, and facing our own decisions about prenatal testing with two subsequent pregnancies. It also comes out of conversations with countless women and men who have approached me, more often than not with tears in their eyes, asking for advice about how to make choices about testing through the course of a pregnancy. In light of recent rapid developments in prenatal testing options, I am writing in response to those questions, and also out of concern that parents are not being given the ethical, emotional, and medical guidance needed to make informed decisions about prenatal diagnoses. I hope this book offers up-to-date information about prenatal testing and serves as a nonjudgmental guide through the options offered and the questions women might want to ask themselves and their doctors while pregnant.

Although this book speaks to prenatal testing in general, for three reasons it focuses upon the ethical and practical questions surrounding prenatal testing for Down syndrome. First, Down syndrome is the most commonly occurring chromosomal condition, and as a result, many tests are designed specifically to identify fetuses with Down syndrome. For instance, one test that recently came on the market is called MaterniT21, where T21 refers to trisomy 21, the technical term for Down syndrome. Second, although the chance of having a baby with Down syndrome increases with maternal age, it is generally (with the exception of a rare form of Down syndrome caused by translocation) not an inherited trait. Women across cultures, races, and socio-economic groups are equally likely to conceive babies with Down syndrome. Finally, I write most about Down syndrome because I know the most about it both from an academic and personal perspective and because many of the things I have learned apply to families with children with other disabilities as well.

Most women who receive a prenatal diagnosis of Down syndrome or another genetic condition automatically face a decision about whether or not to terminate their pregnancy, and they must make that decision quickly. Until recently, prenatal diagnoses didn’t typically come until well into the second trimester, and some women found themselves grappling with state laws about the timing and legality of an abortion. Now some cities have access to prenatal tests (such as MaterniT21, mentioned above) that can identify Down syndrome as early as eight to ten weeks into a pregnancy. These very early screening tests bring yet another implication of urgency in making a decision about abortion if a woman wants to terminate within the first trimester. Prenatal diagnosis presents an automatic choice that, for many, comes along with a great deal of emotional stress and pressure.

I was talking with a developmental pediatrician recently, and she commented that we need to offer “pre prenatal counseling.” Virtually all pregnant women will face decisions about prenatal testing. Women need to consider their approach to these tests and their results before they are even offered. These conversations bring up weighty topics, but they also offer a chance for couples to alleviate the stress of making urgent decisions about testing and/or terminating a pregnancy. Moreover, these conversations provide women with confidence so they can advocate for themselves and their babies.

Technological advances are making prenatal genetic testing easier, earlier, and less invasive. For all women who have an increased chance of having a child with Down syndrome, ACOG now recommends offering one of the new blood tests that detects fetal DNA with Down syndrome as early as eight to ten weeks gestation. Once these tests have been tested for accuracy among low risk women, ACOG and several other organizations will likely recommend offering the same screening for Down syndrome to all pregnant women. As a result, every woman or couple, no matter their risk level, will face decisions about prenatal testing throughout the course of a pregnancy. This book is not intended to guide women who are grappling with what to do after a prenatal diagnosis. Rather, this book is intended to inform women or couples about their choices related to prenatal testing as they enter into pregnancy.

To purchase the book, click here for options on Kindle, Nook, and any other ereader, including your computer or phone.

Down Syndrome

family

pre prenatal counseling

prenatal testing

Previous Post

January 24, 2013

A Good and Perfect Gift Available for FREE Today Only!

Next Post

January 28, 2013 Imagining Down Syndrome

Browse Our Archives

Select a Category Articles Books Disability Down Syndrome Faith family Perfectly Human Uncategorized

Select a Month February 2014 January 2014 December 2013 November 2013 October 2013 September 2013 August 2013 July 2013 June 2013 May 2013 April 2013 March 2013 February 2013 January 2013 December 2012 November 2012 October 2012 September 2012 August 2012 July 2012 June 2012 May 2012 April 2012 March 2012 February 2012 January 2012 December 2011 November 2011 October 2011 September 2011 August 2011 July 2011 June 2011 May 2011 April 2011 March 2011 September 2010 July 2010 June 2010 May 2010 April 2010 March 2010 February 2010 January 2010 December 2009 November 2009 October 2009 September 2009 August 2009 July 2009 June 2009 May 2009 April 2009 March 2009 February 2009 January 2009 December 2008 November 2008 October 2008 September 2008 August 2008 July 2008 June 2008

TAKE THE

Religious Wisdom Quiz