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August 2014

August 26, 2014

Because They’ll Carry You

We parked her wheelchair on the boardwalk at the edge of the dunes, and I...

August 22, 2014

My Homeschooler Goes to High School

My eldest son went to high school yesterday. His first day of 9th grade was...

August 20, 2014

Bribery Worthy Banana Bread

One of the first things I realized, as the mother of a chronically ill child,...

August 19, 2014

Weeding It Out

For the past couple of months, I've complained to my family that we're drowning in...

August 18, 2014

Moved

Blogging has been my sanity, my salvation, and my friends for a good many years....

August 16, 2014

Assumed

(I've known for a few weeks that my blog was changing addresses and moving to...

August 12, 2014

What I Spent It On

Last week, I was very fortunate to have two friends give me some money to...

August 08, 2014

Fun and Frivolous

If someone gave you $50 with a note that said "Here's a little gift for...

August 07, 2014

At Least She Didn’t Say Conversion

It wasn't quite what we had hoped that it would be....Dr I was supposed to...

August 06, 2014

Dreading The Morning

Here it is nearly 11:00 and I'm still not sleeping. I have to be up...

August 04, 2014

It’s About Time!

If you're anything like me, you're tired of the portrayal of fathers as stupid, inept,...

August 02, 2014

From the Rheumatologist’s Office

We saw Ella's rheumatologist, Dr G, last Tuesday. I've struggled since then with what to...

July 2014

July 29, 2014

On The Funny Bone

* I'll be writing about Ella's doctor appointment from last week tomorrow. It's a lot...

July 26, 2014

Hey Cathmom5!

You won Luca's book!!!!I'm sorry it took so long to tell you, but Blogger decided...

July 22, 2014

Flawless

All morning, I've been thinking back to the girl I was in junior high and...

July 21, 2014

You Made It Possible

A few weeks back, we picked up Ella's new-to-her wheelchair. It was functional and comfortable,...

July 16, 2014

You Should Totally Buy Luca’s Book (Giveaway!!!!)

Last year, I undertook an epic journey through Hell and Buffalo, Texas to see my...

July 12, 2014

This Is What Proof Looks Like

I didn't believe them when they said that her nerves were normal. Call it instinct...

July 08, 2014

The Strangeness of the Internet – Turning on the Lights

The internet is a very weird place...thing...entity. I don't really know what it actually is,...

July 03, 2014

Mystery Illness – We Have to Start at The Beginning

***Before you start reading, please know that Ella has been tested three times for Lyme...

June 2014

June 30, 2014

Panic and Frustration

I've never had panic attacks before. I suppose it's because I've never really had a...

June 27, 2014

And Then She Was Ten

Ella turned ten on Saturday with a quiet birthday celebration with her best friend. The...

June 20, 2014

Don’t Bring a Knife to a Gun Fight

There's been quite the kerfuffle in the Catholic corner of the internet over whether or...

June 19, 2014

Go Ask Your Brother

We are really trying pretty hard to wrap up the school year around here. While...

June 16, 2014

Completely and Totally Blessed

Last week, I finally made peace with the idea that Ella may be in a...

June 15, 2014

Happy Annifathersversary Day

I had this long list in my head of the things I wanted to write...

June 13, 2014

What It’s Like – by Ella

I asked Ella to write what it's like to lose the ability to walk when...

June 13, 2014

You Should Definitely Be Shopping Around

LI don't know why it doesn't occur to me to think about shopping around for...

June 09, 2014

….and it’s Monday…

I made an early morning grocery store run with Wendy this morning. She's a joy...

June 07, 2014

An update from home

We're home again this afternoon. We have orders for a battery of tests, but none...

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